Lifestyle & Trends - Community

Rare diseases: Increasing awareness for better patient outcomes

Getting a diagnosis of any cancer can be frightening, but for those diagnosed with a rare cancer, the emotional toll can be much worse. For some of these patients, the journey to a correct diagnosis may take years, and once they receive an accurate diagnosis, it can be extremely difficult for these patients to find accurate information on their disease. One of the first things patients do is research everything they can about their illness, including connecting with someone who is also living with the disease, and learning their options for disease management and treatment.

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Five reasons Asian Americans should get tested for hepatitis B

More than 1 million Americans have a lifelong, or chronic, infection of hepatitis B. This includes one out of every 12 Asian Americans. If you or your parents were born in Asia or the Pacific Islands, the Centers for Disease Control and Prevention (CDC) recommends that you get tested for hepatitis B.

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Rare Disease Day 2013: Maintaining bone health in people with multiple myeloma

In honor of the sixth annual Rare Disease Day, celebrated on Feb. 28, it is important to drive awareness about some rare cancers that are many times undiagnosed until the cancer has already spread. One particular cancer, multiple myeloma, often goes undiagnosed until the disease has spread to the bone.

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How to support your friend in a split

When a marriage ends in divorce, it's not just the couple who is involved. Friends and family members are also part of the process and often play many different parts. Support can make a critical difference to your friend, but unfortunately, doesn't come with how-to manual.

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Igniting the conversation about rare diseases

Each year, people across the world are invited to join together to raise awareness about rare diseases. Unlike more common conditions such as diabetes and breast cancer, many of these diseases, as well as the people affected by them, are not recognized by their own awareness initiatives throughout the year.

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